Washington, DC – July 17, 2024 – Based on our shared knowledge and experience, the National Alliance for Caregiving and the Global Liver Institute are proud to collaborate in providing recommendations to Centers for Medicare & Medicaid Services (CMS) and the Center for Medicare and Medicaid Innovation (CMMI) that we believe will improve the proposed Increasing Organ Transplant Access (IOTA) Model by addressing the need for additional caregiver support.

While we appreciate the IOTA model’s recognition of family caregivers as key participants in the model, our recommendations address the broader—often systemic— gaps that contribute to caregiver strain and hardship so that caregivers are better supported, prepared and equipped to care for transplant patients, thereby playing a role in improving the measured performance of transplant systems in the IOTA Model.

Commitment to adequately supporting caregivers of transplant patients through the proposed IOTA model will undoubtedly have broad implications for the transplant community, and we urge CMS to prioritize this critical population. View the letter.